A child with a disability or chronic illness needs extra care and support. You may need more help and support from family and community.
Sometimes getting the extra help is hard because your child’s disability or illness needs specialist knowledge. Or it could be because your child’s needs are not understood or accepted by family and friends.
Many families have difficulties with:
- couple and relationship problems.
- sharing the parenting tasks.
- emotional behavior from siblings or extended family.
- making decisions.
- feelings of sadness and exhaustion.
- planning and coordinating services.
- your child’s behaviour.
Please ask a social worker if you would like help finding services or counselling support for you or your family.
There are services you can access. These include:
- counselling and/or mental health care,
- having a break and accessing community participation
- help with planning and coordinating therapies and services.
Some starting points for services include:
- An Early Diagnosis support program. This is a part of some early intervention services
- Your General Practitioner (GP) can talk with you about your child’s well-being and discuss options.
- Uniting Care, Unifam (1800 864 846) (sliding scale fees including full funding) http://www.uniting.org.
- Benevolent Society (1800 236 762), www.benevolent.org.au/
- National Disability Insurance Scheme (1800 800 110), www.ndis.gov.au
- Carers NSW (1800 242 636) (semi-funded) http://www.carersnsw.org.au/
- Relationships Australia (1300 364 277) (sliding scale fees) http://www.nsw.relationships.com.au/
- Transcultural Mental Health (1800 648 911) http://www.dhi.health.nsw.gov.au/tmhc
- Siblings Australia http://siblingsaustralia.org.au/