Family support for children with developmental delay or disability

Disclaimer: This fact sheet is for education purposes only. Please consult with your doctor or other health professional to make sure this information is right for your child.

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A child with a disability or chronic illness needs extra care and support. You may need more help and support from family and community.

Sometimes getting the extra help is hard because your child’s disability or illness needs specialist knowledge.  Or it could be because your child’s needs are not understood or accepted by family and friends.

Many families have difficulties with:

  • couple and relationship problems.
  • sharing the parenting tasks.
  • emotional behavior from siblings or extended family.
  • making decisions.
  • feelings of sadness and exhaustion.
  • planning and coordinating services.
  • your child’s behaviour.

Please ask a social worker if you would like help finding services or counselling support for you or your family.

There are services you can access. These include:

  • counselling and/or mental health care,
  • having a break and accessing community participation
  • help with planning and coordinating therapies and services.

Some starting points for services include:

The Children's Hospital at Westmead
Sydney Children's Hospital, Randwick
Hunter New England Kids Health

For publications recommended by our hospitals' experts, please visit the Kids Health book shop.