It’s all about the kids

Thanks to generous support of Save our Sons Duchenne Foundation and their major partner Chemist Warehouse, the establishment of a newly created role to support patients treated by our Neurogenetics/Neuromuscular Clinical Service has been made possible.

This week Clinical Nurse Specialist Lisa Tang started in the new role with the Neurogenetics Clinical Service to provide comprehensive nursing support to patients and families with neuromuscular conditions. A/Prof Kristi Jones, said the impact of this new role on service delivery will be invaluable and will play a vital role in streamlining care for patients – including facilitating support when they are ready to transition to adult care.

The Neurogenetics/Neuromuscular Clinical Service, affiliated with the Institute for Neuroscience and Muscle Research, provides multidisciplinary cares for over 2,000 patients and their families. Lisa will work closely with the medical and allied health team within the Service to co-ordinate consultations for around 70 patients per month. An important component of the new role is providing a first point of contact for families. Lisa will help co-ordinate investigations and appointments and be a key contact with paediatricians and community allied health providers, external medical teams and others involved in the care of patients including schools, NDIS planners and social workers.

Another purpose of her role is to be involved in the ongoing development and implementation of best-practice protocols and quality improvements in the clinical care of patients and families attending Neurogenetics/Neuromuscular Clinics. Lisa is excited to be joining the Neurogenetics Team and is very much looking forward to supporting children and young people with Neuromuscular conditions and their families. “I am grateful to the Save Our Sons Duchenne Foundation for this wonderful opportunity… thank you very much.”