Tube feeding - Transitioning from tube to oral feeding

Disclaimer: This fact sheet is for education purposes only. Please consult with your doctor or other health professional to make sure this information is right for your child.

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There is a continuum from non-oral feeding to oral feeding. Some children are totally tube feed dependent, others progress to eating small amounts. Some children can eat solids but receive all liquids by tube. Some children eat by mouth but need extra calories via the tube to grow. Other children progress to oral feeding and are able to grow and thrive without the tube.

Readiness factors

To determine how ready your child is to transition towards oral feeling, consider the following readiness factors:

  • Has the medical condition leading to tube placement in the first place been resolved?
  • How well is your child in terms of general health and growth?
  • Can your child swallow safely? (If there has been any history of aspiration, a speech pathology assessment involving a modified barium swallow study should be conducted before larger amounts and varieties of food or liquid are given)
  • Does your child have the available oral skills to eat the volume of food needed to support nutrition?  (A speech pathologist and dietitian will help to determine this)
  • Does your child demonstrate a sense of hunger?

Oral preparation

Opportunities for oral stimulation and experience should be given to your child before the introduction of oral feeding.

A program of suitable activities should be devised by a speech pathologist to meet your child’s individual needs. Oral activities may increase the amount of saliva your child produces and it is important to monitor while doing the activities to make sure they are able to swallow and manage their saliva safely.  A speech pathologist should assess your child’s ability to swallow when beginning a program of oral activities and especially before any food or liquid is introduced. Some activities your speech pathologist may suggest to help you prepare include:

  • Offering positive touch experiences to your child’s face and lips e.g. cheek to cheek cuddles.
  • Bringing their hands and fingers: to their mouth / between their lips / inside their lips.
  • Mouth toys of assorted shape and firmness.
  • Swiping food on the lower lips and gum followed by tastes to the tongue (initially in very small amounts)
  • Making associations between tube feeds and oral stimulation e.g. mouthing a toy and smelling a food prior to and while being tube fed to create a positive link between the feeling of hunger and the oral area.

Swallowing safety

Your child’s feeding tube may have been inserted because he or she could not swallow safely. If the necessary skills for oral feeding improve, then your child’s ability to swallow safely may also improve. However taking small amounts of food and liquid is quite different from taking full meals orally.

Close monitoring and management by your child’s speech pathologist is necessary to evaluate ongoing safety and efficiency of the swallowing mechanism. A Modified Barium Swallow study may be necessary to objectively investigate your child’s swallowing skills.

Signs of swallowing difficulty

Signs that your child is having difficulty swallowing may include (but not be limited to):

Textures and Food Types

Children transitioning to oral intake may require a modified diet.  Your child’s speech pathologist will assess your child’s oro-motor and swallowing skills and make recommendations.

Modifications can be made to fluids and foods so that they are easier and safer to swallow. If your child is put on a modified diet by your speech pathologist, it is important that the recommended modifications are followed closely.

Children, who are transitioning from tube to oral feeds, may increase the variety of foods in their diets more slowly and more cautiously than other children. It is important to offer foods regularly as tastes change and develop.

  • coughing, gagging, excessive drooling.
  • increased congestion.
  • gurgly voice.
  • irritability.
  • food refusal.
  • mealtimes lasting longer than 30 minutes.

Example Fluid Modifications:

Mildly Thick

Fluid runs freely from the spoon but leaves a mild coating

Moderately Thick

Fluid slowly drips in dollops off the end of the spoon

Extremely Thick

Fluid sits on spoon and does not flow off it

Example Diet Modifications:

Soft

Food may be naturally soft or is cooked/cut to alter its texture

Minced and Moist

Food is soft, moist & easily mashed with a fork; lumps are smooth and rounded

Smooth Pureed

Food is smooth, moist and lump free; may have a grainy quality

Access to Utensils/Equipment

Modified or specialist equipment may be recommended for your child with the introduction of oral intake. This will be determined by your speech pathologist and or occupational therapist. Specialist equipment may include special teats/bottles, cups, utensils, oral-facial stimulation materials and seating systems. Many of these products are available commercially or alternatively your therapist will help you source these items.

Multidisciplinary Team Approach

Children who are transitioning from tube to oral feeds will require assistance from a team of health professionals. Your team may include some or all of the following:

  • nurse consultant
  • speech pathologist
  • dietitian
  • occupational therapist
  • physiotherapist
  • paediatrician
  • gastroenterologist

Removal of the Feeding Tube

A feeding tube should remain in place until your child can consistently eat and drink enough food and fluid, even in times of illness. Removing the tube too early may result in excessively long mealtimes for you and your child and place him / her at risk of malnutrition and poor growth.

Remember:

  • To determine how ready your child is to transition towards oral feeling, consider the readiness factors.
  • A speech pathologist should assess your child’s ability to swallow when beginning a program of oral activities and especially BEFORE any food or liquid is introduced.
  • Close monitoring and management by your child’s speech pathologist is necessary to evaluate ongoing safety and efficiency of the swallowing mechanism.
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The Children's Hospital at Westmead
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Sydney Children's Hospital, Randwick
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Hunter New England Kids Health
www.hnekidshealth.nsw.gov.au

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