Spinal Cord Injury - Making decisions about treatments in Spinal Cord Injury

Disclaimer: This fact sheet is for education purposes only. Please consult with your doctor or other health professional to make sure this information is right for your child.

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Making decisions about health care is an individual’s right. Gather information from both the hospital rehabilitation team and the NSW Paediatric Spinal Outreach Service to help you make informed decisions about your child’s healthcare.

Evidence Based Medicine (EBM)

The evolution of medicine means that the best treatments are available to children and their families. These changes give families the safest, most accurate, and most clinically justified treatments.

EBM means that individual clinical skill is combined with the best available clinical evidence from systematic research. Evidence based treatments are proven to be safe and effective. EBM is used to diagnose Spinal Cord Injury and treat any associated complications. This type of treatment is often called mainstream or conventional medical treatment.

Complementary therapies and alternative therapies

Some families choose to explore complementary or alternative therapies. Many of these do not have clinical evidence to prove their benefits systematically. It is important to always speak to your treating team if additional therapies are being explored, trialled or used on a regular basis. Some complementary and alternative therapies impact on conventional treatments and full disclosure is important.

What are complementary therapies?

Complementary therapies may be used together with conventional medical treatments to support and enhance your child’s quality of life and well-being. They do not aim to “cure” the person. Instead they are used to help control symptoms such as pain or fatigue.

Complementary therapies include:

  • Relaxation
  • Meditation
  • Visualisation
  • Aromatherapy
  • Reflexology
  • Music therapy
  • Art therapy
  • Massage.

Some complementary therapies may not be recommended for people with Spinal Cord Injury. Always talk to your doctor before starting any complementary therapy.

What are alternative therapies?

Alternative therapies are used instead of conventional medical treatments. Alternative therapies are often promoted as “cures” but they are unproven and have not been scientifically tested. They may cause harm or suffering to those who use them instead of conventional medical treatments.

Some examples of alternative therapies include:

  • Naturopathy
  • Stem Cell intervention
  • Homeopathy 
  • Chinese herbs
  • Megavitamins.

Remember:

  • Speak to your team about any additional therapies your child is having.
  • Tell your team if your child is following any specific alternative diets.
  • Some additional therapies may cause harm.
  • Having unproven remedies or treatments may rule your child out of participating in new evidence based trials.
  • Information about Stem Cell research is available from your treating Doctor. 
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The Children's Hospital at Westmead
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Sydney Children's Hospital, Randwick
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Hunter New England Kids Health
www.hnekidshealth.nsw.gov.au
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Northcott
www.northcott.com.au

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