NICU awareness month: inspiring hope

Our team in the Grace Centre For Newborn Care work around the clock to ensure all their patients and families receive the best possible care and achieve the best possible outcomes. An example of this is three year old Mina.

At just 20 weeks gestation it was picked up that Mina had a heart condition called Truncus Arteriosus, is a rare type of heart disease in which a single blood vessel comes out of the right and left ventricles, instead of the normal 2 vessels.

Three days after she was born and just five days before her first Christmas, Mina was transported to Grace.

As the New Year began Mina and her family were recovering from a number of heart surgeries and spent a number of weeks in The Children’s Hospital at Westmead.

After spending a number of days in an induced coma, slowly but surely Mina started to come back to life, her feeding tubes were removed and she started to eat for the first time on her own.

Finally Mina began putting on weight and her wounds began to heal and she was able to return home with the rest of her family.

Mina’s mum Marie said the second she arrived in the NICU she knew her baby was in the best hands.

"On arrival at Grace we were put at ease and given respite in the calming environment created by the nursing staff,” she said.

"We already had a three year old son and he was welcome to see his sister and he felt like our time at the hospital was a wonderful holiday.

"We were always well informed about what was going on and even since Mina left she has been followed up with development assessments.”

Now Mina is boisterous toddler, she loves swimming and has just started learning to ride a bike and spell her name.

Mina is aware of her “special heart” and proudly shows off her zipper scar to anyone who will listen.

Although Mina will need to return to The Hospital in the future Marie says they know she is in good hands.

“Her future looks bright and it is all because of the wonderful team at the hospital. Even though she faces some challenges in the future we know that she will be ok.”

For more information on NICU awareness day click here