In the media

  • Riley first to receive life-changing new treatment for dwarfism

    13-year-old Riley was over the moon to become the first patient at The Children’s Hospital at Westmead (CHW) and one of the very first in NSW to receive Voxzogo® (vosoritide), a life-changing new treatment for achondroplasia.
    Friday 25 August 2023

  • Senri's life-changing surgery for bomb injuries

    Coming out of surgery for extensive injuries caused by a bomb, the first question Senri asked was whether his fingers were straight. When his guardian Ros held out her hands with fingers outstretched and told him they were as straight as hers, he looked down at his hands in disbelief to see them straight for the first time in over two years.
    Tuesday 1 August 2023

  • New model of care changes Niamh's life

    When 18-year-old Niamh was diagnosed with a rare life-threatening form of invasive fungal sinusitis, she faced a future filled with surgeries and long stays in hospital, but a new model of care has helped to change that.

    Monday 24 July 2023

  • Australian-first surgery creates special bond between baby boys

    When Jackson and Reuben were born in September 2022, Central Coast mothers Kayla and Hayley had no idea the special bond they would soon form.
    Monday 24 July 2023

  • World first trial for kids with Duchenne muscular dystrophy

    Three boys in NSW have become the youngest in the world to receive therapy for Duchenne muscular dystrophy as part of a world-first international clinical trial for children aged under four.

    Wednesday 19 July 2023

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