Our patients

  • New treatment on PBS gives hope to kids with Cystic Fibrosis

    Twelve-year-old Cystic Fibrosis patient Nick has become one of the first paediatric patients to receive the life-changing treatment, Trikafta, following its listing on the Pharmaceutical Benefits Scheme (PBS). Nick was diagnosed with Cystic Fibrosis (CF) when he was just 16 weeks old. CF is an inherited disorder that causes severe damage to the lungs, digestive system and other organs in the body.
  • Hope is where the heart is

    Lisa Paisley is no stranger to heart disease. Not only was she born with a heart defect, but so were all three of her children.
  • Motorbike racing helps ease arthritis treatment

    After being seen by doctors at The Children’s Hospitals at Westmead, Paige was diagnosed with Polyarticular Juvenile Arthritis, a condition that was affecting multiple joints including her hands, ankles and wrists.
  • From one scoliosis warrior to another

    While the diagnosis was daunting, Lucy wasn’t going to let it define her, instead putting her focus into helping other kids like her by raising money to purchase and gift scoliosis patients with a Higgy Bear.
  • From 10 seizures a day to one a week

    How Bronte went from 10 seizures a day to one a week. A new drug trial brings hope for children with Dravet Syndrome, a severe form of epilepsy.