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Twelve-year-old Cystic Fibrosis patient Nick has become one of the first paediatric patients to receive the life-changing treatment, Trikafta, following its listing on the Pharmaceutical Benefits Scheme (PBS). Nick was diagnosed with Cystic Fibrosis (CF) when he was just 16 weeks old. CF is an inherited disorder that causes severe damage to the lungs, digestive system and other organs in the body.
Tuesday 19 April 2022
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Lisa Paisley is no stranger to heart disease. Not only was she born with a heart defect, but so were all three of her children.
Thursday 14 April 2022
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After being seen by doctors at The Children’s Hospitals at Westmead, Paige was diagnosed with Polyarticular Juvenile Arthritis, a condition that was affecting multiple joints including her hands, ankles and wrists.
Monday 11 April 2022
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While the diagnosis was daunting, Lucy wasn’t going to let it define her, instead putting her focus into helping other kids like her by raising money to purchase and gift scoliosis patients with a Higgy Bear.
Monday 11 April 2022
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How Bronte went from 10 seizures a day to one a week. A new drug trial brings hope for children with Dravet Syndrome, a severe form of epilepsy.
Friday 25 March 2022
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