• Hope for children with spinal muscular atrophy (SMA) Type 1

    Our Network has led the way in ground breaking research, giving new hope to children with SMA who often die before they are two. There has been no specific treatment for SMA, which affects the motor neurons of the spinal cord, causing muscle weakness and wasting.

  • Working together

    The Annual Public Meeting (APG) is an opportunity to reflect on our achievements and look forward to the future. We are proud of our achievements, outlined in the 2017 Annual Review.

  • Bathurst bullet train to stop at Westmead

    The Bathurst bullet train will stop at Westmead from late November, making it easier for families travelling to The Children's Hospital at Westmead. At the moment, the service stops at Lithgow, Mount Victoria, Katoomba, Springwood, Penrith and Parramatta before arriving at Central Station.

  • New resource for parents launched

    Two year old Alexander and his father Rob (pictured) today attended the launch of 'Haemophilia – a guide for parents of a newly diagnosed child.' Parents anywhere in Australia will receive a copy.of this new resource developed by the Haemophilia Foundation Australia.

  • The importance of speech and language support for Craniosynostosis patients

    Surgeon, Damain Marucci, explains why speech and language therapists are so important in treating kids with craniofacial conditions.