Sclerotherapy information sheet

 

Contact details

Email: schn-V-TAC@health.nsw.gov.au | We aim to reply within 3 business days. 

Phone: (02) 9382 1749 | Monday-Friday 8:00am-4:00pm | V-TAC clinic bookings, referrals, and general enquiries. 

Clinical Nurse Consultant: 0408 722 869 | Call or text Monday-Friday 8:00am-4:00pm | Non-urgent clinical questions and advice.

Location: High Street entrance - Sydney Children's Hospital, Randwick

Out-of-hours: Call (02) 9382 1111 and ask for the on-call doctor for surgery. 

Introduction

This information sheet explains sclerotherapy treatment and what to expect when your child comes to Sydney Children’s Hospital, Randwick, for sclerotherapy treatment.

This information does not replace discussions with your child’s vascular anomalies team and not all the information may apply to your child. Please ask your care team any questions or raise any concerns you may have about your child and their treatment.

Before treatment

You child will usually have had an ultrasound or MRI. The results are then discussed with the multidisciplinary Vascular Tumours and Anomalies Centre (V-TAC) team. Sclerotherapy is recommended by the team, based on your child’s symptoms and test results. 

We will book your child in for up to three or four treatments 4 to 8 weeks apart. More or less treatments may be required, and we will re-assess this regularly. Our V-TAC nurse will be in touch with you to confirm the treatment dates. The doctors will discuss with you what sclerosant/medication would be best to be used and if any other methods will be used to treat the malformation. 

If the area to be treated is in an area where compression can be applied, we will arrange for the physiotherapist to measure your child for a custom-made compression garment that is to be worn after treatment. These garments can take up to three weeks to arrive so make sure you have this done in time for your child’s first treatment. 

In children with a venous malformation, we will do a blood test to check for any clotting abnormalities, and to make sure the biochemistry is normal. If any abnormality is found, treatment of this may be required before the sclerotherapy to reduce the risk of clotting complications. This will be discussed and arranged when you see the V-TAC team. 

You will receive information about how to prepare your child for the procedure in your admission letter. If required, arrangements will be made for you to come to the hospital a few days or weeks before the procedure for a preadmission check by the anaesthetist. You will also receive a call in the week before to make sure your child is well and to confirm the arrangements for treatment. If your child or their accompanying adult are not well, the treatment will have to be rescheduled.

On the day of treatment

General anaesthetics and fasting

It is important for anyone having an anaesthetic to have an empty stomach. If the stomach is full, there is a chance that during the anaesthetic whatever is in there could end up somewhere else like the lungs. 

Before the day of the operation, the day surgery staff will call and give you times to stop eating and drinking. Generally, this will mean: 

  • No solid food or milk (including formula) for six hours before anaesthesia.
  • For breastfeeding children, we usually request 4 hours with no breast-feeds before anaesthesia. Formula feeds are thicker, so they are considered as “solids” for fasting. •
  • Clear fluids (things you can see through) up to 1 hour before anaesthesia.

Your child's treatment team

On the day of the procedure, the V-TAC nurse will come and see you. 

You will meet the interventional radiologist, who will explain the procedure in more detail, discuss any questions you may have and ask you to sign a consent form giving permission for your child to have the sclerotherapy. 

If your child has any medical problems, please tell the doctors. An anaesthetist will visit to talk to you about your child’s anaesthetic, and make sure they are fit and well on the day.

Recovery in hospital

Sclerotherapy is usually a day stay procedure. Your child will come into hospital on the day and be discharged once awake and comfortable after the procedure. 

The exceptions are treatment of some larger vascular malformations or those in the head and neck region. These children need to stay the night and may need to be observed in intensive care unit.

After treatment

Recovery in the ward

Your child will return to the ward after they have recovered from the anaesthetic. 

The treated area may become quite swollen. This should subside after a few days and resolve almost completely over two-three weeks. 

If the treatment has been in the neck or another vital area, your child may be monitored in the intensive care unit. In that case, they may need to be on a breathing machine until the swelling settles. This is to prevent any unexpected breathing problems. This will be discussed with you and planned before the treatment. 

If your child has a compression garment, they need to have it on as soon as possible after the treatment. Otherwise, the area may be bandaged or have a dressing on it.

General anaesthetic side effects

Some children feel sick and vomit after a general anaesthetic. Your child may have a headache or sore throat or feel dizzy, but these side effects are usually short-lived and not severe. Your child can start eating and drinking as normal once they feel like it.

Going home

Recovery

You will be able to take your child home once the doctors/nurses are happy that your child is recovering well. 

Any bruising and swelling of the malformation will only last for a few days. Some parents say that the discomfort or swelling is more noticeable on day 3 or 4 rather than straight after the procedure. This is normal. Children’s pain relief medicine such as paracetamol or ibuprofen is usually enough to deal with any pain. 

Depending on the area treated, your child should be able to go back to childcare/preschool/school within a few days. Any compression garment or bandages should be worn until the next treatment or 4 to 6 weeks following treatments. They can play sport after three weeks if they feel comfortable. 

The doctors/nurses will tell you if your child needs further sclerotherapy procedures and if so, when. 

Your child may be booked for a series of treatments, or it may be a single treatment. After your booked treatments have been completed, we will arrange to review your child at the V-TAC Clinic in 4 to 6 months. This is so the doctors can check on your child’s progress and decide whether the treatment has worked or more treatments may be required.

Things to look out for

After going home, you should seek medical attention if:

  • Your child is in a lot of pain and pain relief medicine does not seem to help
  • The treated area is unusually hot, red and painful or your child is generally unwell with a high temperature or not eating or drinking as usual
  • A clot or swelling develops in another part of the malformation
  • You have any other concerns that things are not progressing as expected

The future

Repeated treatments

Your child might need several sclerotherapy procedures to reduce the size and effect of malformation. As sclerotherapy causes swelling and discomfort, it is safer to carry out several smaller treatments, limiting these effects each time. 

Sclerotherapy will not ‘cure’ the malformation, but it should shrink it significantly. Children may need to have further sclerotherapy as they get older and, in some, surgery may be suggested to improve the result. 

Your doctor will explain the options for treatment suitable for your child. These recommendations may change as time goes on. 

Things to remember

Important things to remember:

  • Treatment with sclerotherapy aims to reduce the size and symptoms of your child’s vascular malformation.
  • The method of sclerotherapy is tailored for each child, and this will be discussed with you before going ahead.
  • Most sclerotherapy can be done as a day stay procedure, although some children need to stay in hospital for a day or two while the swelling goes down.
  • Sclerotherapy is not a cure, but we hope it will help your child by shrinking the malformation and helping to improve any symptoms they may have. 

If you have any questions about your child’s treatment, please feel free to ask the V-TAC Team at any time.