Cerebral Palsy parenting support

Here's a collection of services to help with raising kids. 

Ask Izzy

Ask Izzy is a website that connects people in need with housing, a meal, money help, family violence support, counselling and much more. It is free and anonymous, with thousands of services listed across Australia. If you’re on the Telstra or Vodafone mobile networks, you can access Ask Izzy on your phone even if you don’t have credit or access to Wi-Fi.

Kindred

Kindred is a not-for-profit organisation that supports families with children aged birth to 8 years old with a developmental delay or disability and medical needs. Kindred is by families, for families. Everyone who works for Kindred has a child with a disability and is trained to draw upon their lived experience to support other families.

They offer a “Peer Connect program” uniting parents and caregivers just starting out on their journey with those further along the way. They offer “My Time Peer Support” groups for parents and carers raising a child with a delay or disability. It’s a place for you to unwind and talk about your experiences.

Family Connect and Support

Family Connect and Support (FCS) is a NSW Government service that can help you and your family connect to the right services and support at the right time. The FCS provider in your local area can help you with your individual needs and circumstances. FCS is free and voluntary. It is available across NSW, and anyone can contact or make a referral to FCS.

Raising Children

The Raising children website is for all Australian parents and carers. It provides up-to-date, scientific information about raising children and caring for yourself as a parent or carer. The website gathers information and translates it into everyday language with plenty of real-life examples. 

Carer Gateway

Carer Gateway is an Australian Government website providing free services and support for carers. If you care for a family member or friend with disability, a medical condition, mental illness, or who is frail due to age, Carer Gateway can help you.


 

Disability Gateway

The Disability Gateway is an Australian Government website that is a central point of entry for referrals to disability information, services, and programs. It provides information on health, housing, employment, transport, and everyday living.

Carers NSW

Carers NSW works with all carers regardless of their age, location, life-stage or circumstances. This includes those caring for individuals with support needs relating to ageing, disability, health and mental illness.

Carers NSW offers online resources, supports and services, and training and education. This includes:

  • Carer Support Groups
  • Career Pathways for Carers
  • Carer skills program for older people
  • Online education resources

For carer information and support please phone Carers NSW on 02 9280 4744 (9.00am to 5.00pm Monday to Friday).

Translating and Interpreting Service (TIS) National

The Translating and Interpreting Service (TIS National) is an interpreting service for people who do not speak English and for agencies and businesses that need to communicate with their non-English speaking clients.

TIS National provides access to interpreters over the phone or to attend an appointment in person. The majority of TIS National services are free to non-English speakers

The National Public Toilet Map

The National Public Toilet Map shows the location of more than 23,000 public and private public facilities across Australia, including toilets, adult change, and baby care. Information is provided about each toilet, such as location, accessibility details, opening hours and features like sharps disposal and showers.

AskNED

AskNED is Australia’s largest dedicated one-stop-shop for Assistive Technology and Equipment. The AskNED website provides connects customers to suppliers and offers free and impartial information on over 18,000 products.

Infoxchange Service Seeker

Infoxchange Service Seeker is an online directory of over 390,000 health, welfare and community service providers in Australia.

To find the services you need, enter the topic and your postcode. You can browse a list of providers or view the services near you on a map.

Siblings Australia

Siblings Australia is a unique national organisation promoting better support for siblings of children and adults with disability. Siblings Australia:

  • Provides direct support to siblings.
  • Offers education and support, empowering parents to support their children.
  • Works with service providers within the health, education, and disability sectors to assist them in providing more informed support to siblings.
  • Visit the website

CPActive

CPActive is an advocacy campaign from Cerebral Palsy Alliance. The CPActive community brings together people with disability, families, disability workers and allies who are passionate about creating positive, lasting change for people with disability. CPActive’s goal is to amplify the voices of lived experience to make sure people with disability have a say on the issues that affect them.

Karitane

Karitane offer a range of in-person and online education, supports, and services for parents with children from 0 to 5 years. Services include feeding, sleep, toddler clinic, and parent mental health and supports.

For parenting advice call the Karitane Careline 1300 227 464 or 9794 2350 and speak with one of the experienced Child and Family Health Nurses

Centres located in: Carramar, Shellharbour, Oran Park, Shortland, Randwick, and Wolli Creek

The Cerebral Palsy Forum

The Cerebral Palsy Forum connects parents of children with cerebral palsy with each other. Families can ask questions, share experiences, and offer support 

MyTime Playgroup

MyTime support groups are a national initiative for parents/caregivers of children with disability or a chronic medical condition. MyTime is an opportunity for members to socialise and share ideas with other parents/caregivers.

Healthy Mothers Healthy Families

Healthy Mothers Healthy Families (HMHF) is a website with online modules designed for mothers of children with a disability. HMHF helps families to find their balance though empowering mothers to seek their own balance of healthy activities for themselves and their family.

In the site you will find:

  • Educational videos, worksheets and information about how to make healthy changes
  • Evidence based information about stress, diet, physical activity and much more
  • 10 modules that mothers can complete at their own leisure at home on a computer, on their phone…anywhere
  • Visit the website

Healthy coaching via NSW Government "Get Healthy Service"

The Get Healthy Service helps people over the age of 16 living in NSW to have better health and wellbeing. It’s a free program to help you reach your health goals. You do it from home, at a time that suits you.

The program includes 6 or more regular confidential coaching calls with a university qualified health coach, who will help you set and work towards your goals.

When you join Get Healthy, you get a customised plan to help you create healthy habits. The program can support you to: eat healthy, get active, reduce the amount of alcohol you drink, reach and stay at a healthy weight, or gain a healthy amount of weight in pregnancy.

For more information, call 1800 806 258 or visit the below website.

Healthy Advocacy panel event

This panel discusses how to navigate the difficulties of accessing the hospital system. It goes through helpful strategies for parents to be confident advocates, information on what to do if you disagree with a provider, and tips to make hospital stays or appointments better and easier to access

Last updated Wednesday 7th February 2024