Volunteer support

Caring for a seriously ill child at home puts an immense physical and emotional strain on the whole family.

For an unwell child it can mean isolation from their usual friends and companions. Siblings can feel they are not receiving as much attention. Everyone in the family can feel they need a break and some time out.

Respite services available for paediatric palliative care patients and their families are limited in NSW. An alternative form of respite can be provided by a local volunteer service that provides in-home assistance and offers a variety of ways to meet the needs of each family:

• entertainment for an unwell child and/or their siblings through play, reading, craft or other appropriate activities
• light practical help around the house (washing up, light cleaning, light gardening)
• listening ear to members of the family/caregivers who need to talk
• assisting with family outings – e.g. grocery shopping or visiting park
• practical support for parents/caregivers such as providing additional help with siblings during long appointments and running errands etc.

These small, practical ways of helping can have a meaningful impact on the quality of life for families with a child with a life-limiting illness.