Epidermolysis bullosa handbook

EB requires complex care over a long period of time and access to screening and preventative education as young patients grow older. 

The Epidermolysis bullosa (EB) service is for paediatric patients across NSW and the ACT and includes comprehensive admissions from birth to adult care.

We provide monthly clinics and support for children with EB and short day admissions on the medical day unit if required.

We also connect with your family, doctor, local services and schools to coordinate appropriate care and educational support.

Read about daily management, wound care and educational support in this handbook designed for patients and families. 


Last updated Monday 5th February 2024