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  1. Home
  2. Epidermolysis Bullosa Handbook
  3. Epidermolysis Bullosa Clinical Practice Guidelines

Clinical practice guidelines

Here's a list of clinical practice guidelines for Epidermolysis Bullosa (EB). 

Listen

Epidermolysis Bullosa clinical practice guidelines

Delve into essential protocols and recommendations designed to enhance the care and management of individuals affected by EB.  

Discover evidence-based insights and expert consensus to navigate the complexities of EB with confidence and compassion.

  • Anaemia (opens in a new tab)
  • Hand surgery (opens in a new tab)
  • Laboratory diagnosis (opens in a new tab)
  • Neonatal (opens in a new tab)
  • Occupational therapy (opens in a new tab)
  • Oral health (opens in a new tab)
  • Pain (opens in a new tab)
  • Palliative care (opens in a new tab)
  • Physiotherapy (opens in a new tab)
  • Podiatry (opens in a new tab)
  • Pregnancy (opens in a new tab)
  • Preventative nutritional care (opens in a new tab)
  • Psychosocial (opens in a new tab)
  • Wound care (opens in a new tab)

Microsites

Epidermolysis bullosa handbook
  • National EB Dressing scheme
  • Wound care
  • Physio and occupational therapy
  • Pain management
  • Daily management
    • Clothing and footwear
    • Hygiene and bleach baths
    • Daycare and school
    • Nutrition
    • Dental care
  • Education and support
  • Video resources
    • Adam's story
    • Billy's Story
    • Alexis' Story
  • Clinical practice guidelines
  • Antenatal and postnatal care and referrals
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Last updated Monday 3 November 2025

Sydney Children’s Hospitals Network acknowledges that our facilities are built on the lands of the Bidjigal, Cammeraygal, Burramattagal, Cabrogal, Wangal, and Woddi Woddi. Our services extend across the lands now known as New South Wales. 

Aboriginal people believe these lands hold the ancestral spirits of those who have come and gone before them.

We acknowledge this is, was, and always will be, Aboriginal land.


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