It’s important that an early referral to nutritional and dietetics services is made and regular weight and growth records are kept.

Evidence suggests that nutrition plays an essential role in wound healing and children with EB (particularly those with more severe types) will naturally require a higher calorie intake.

Good nutrition leads to weight gain, more energy for your child to play and helps heal and manage their wounds.

Our dietetic team will communicate with families, GP’s, early childhood services, and local dietitians to help set up regular growth measurements and any changes to diet that are needed to support wound healing and appropriate growth.