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Epidermolysis Bullosa Handbook
Epidermolysis Bullosa Video Resources
Life With Epidermolysis Bullosa: Alexis' Story

Alexis' story

Life with Epidermolysis Bullosa: Alexis' Story

Life with Epidermolysis Bullosa

The Emotional Impacts of Epidermolysis Bullosa for parents

Microsites

Epidermolysis bullosa handbook

National EB Dressing scheme (NEBDS)
Dermatology and wound care
Physiotherapy and occupational therapy
Pain management and procedure support
Daily management
Education and support
Video resources
Clinical practice guidelines
Antenatal and postnatal care and referrals for epidermolysis bullosa

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Last updated Monday 2 June 2025

Sydney Children’s Hospitals Network acknowledges that our facilities are built on the lands of the Bidjigal, Cammeraygal, Burramattagal, Cabrogal, Wangal, and Woddi Woddi. Our services extend across the lands now known as New South Wales.

Aboriginal people believe these lands hold the ancestral spirits of those who have come and gone before them.

We acknowledge this is, was, and always will be, Aboriginal land.

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