People living with Spina Bifida can develop skin problems due to limited movement, weak muscles, poor sensation and poor circulation.

Signs that there might be a problem:

  • discolouration of the skin (red, white, brown or purple)
  • red mark which does not fade within 10 minutes
  • blisters or sores
  • blood on clothing e.g. underwear and socks.

Change or loss of feeling

Due to decreased or altered sensation, a person living with Spina Bifida may not be aware of potential dangers or differences in temperature and textures (eg. hot, cold, sharp, rough or tight). 

This means that injuries may occur and simple burns or cuts can lead to wounds that take much longer to heal.

Pressure injuries

Pressure injuries are caused by damage to the skin and tissues from constant pressure on areas such as the buttocks, hips, heels and knees.

The pressure obstructs the normal flow of blood, oxygen and nutrients to the skin. If untreated, these injuries can develop into ulcers that take months to heal. They may need surgery and long periods of hospitalisation.

Preventing skin breakdown

Heat and sun 

  • Avoid sitting too close to fires 
  • Do not place hot food and drink directly on your lap
  • Never use hot water bottles
  • Always wear sunscreen, a hat and protective clothing if outdoors for long periods
  • Make sure bath water is not too hot – run cold water first
    Always check metal connectors on seat belts in cars and on wheelchairs that have been sitting in the sun, as well as metal foot plates
  • Avoid any direct contact with hot surfaces such as metal playground equipment, concrete in the playground or surfaces around swimming pools.

Daily management

  • Use a mirror every morning and night to check for signs of a skin problem, such as on your bottom and feet
  • Always wear correct fitting shoes or thick socks to protect your feet
  • Dry between your toes after each bath or shower
  • Always check skin after one hour when using new splints, orthoses or shoes to check they are not causing pressure injuries. If you are worried, make an appointment to have them checked and make changes.
  • Move and shift your weight regularly to take the pressure off your body, see pressure management
  • Avoid storing objects in the pockets of your clothes or on the seat of your wheelchair
  • Make sure your child’s legs and feet are covered when crawling, for protection
  • Change nappies, pads and pants regularly to avoid skin breakdown from urine and faeces.