Neuromuscular, Sydney Children's Hospital, Randwick

Contact

Phone: (02) 9382 1845

Email: SCHN-SCH-NeuromuscularCNC@health.nsw.gov.au

Appointment enquiries: (02) 9382 1684

Urgent referrals: contact the Neurologist-on-call via the Hospital Switch (02) 9382 1111

About our service

The Neuromuscular service provides a consultative service and continuing care for children with:

  • muscle and nerve conditions including spinal muscular atrophy
  • Duchenne and Becker muscular dystrophy
  • neuropathy
  • congenital myopathies
  • myotonic dystrophy
  • limb-girdle muscular dystrophy
  • and collagen-6 related myopathies.

The service includes diagnosis, management and genetic counselling.

Referral process for clinicians

Our department is using Consultmed to manage referrals. The Consultmed platform allows health professionals to send e-referrals to us securely.   

Consultmed questions and technical support: helpdesk@consultmed.co

Referral and appointment process for parents and carers

Request a referral

To make an appointment at our clinic, you will need a referral from your GP, paediatrician or specialist. 

They will assess your child, discuss your concerns, and make a referral to the appropriate service.  

Track your referral

Our department uses Consultmed to manage referrals. Your referring clinician sends the e-referral to us using the secure Consultmed platform.  

Once we receive the referral, we will send you an email with your tracking information. We will update you as we process the referral and book your appointment. 

To receive these updates, please ask your referring clinician to include your email on the referral.  

If your clinician has questions about Consultmed or require technical support, they can contact helpdesk@consultmed.co.  

Need support?

If you need help or have questions about the referral and appointment process, please contact us.  

  • Neuromuscular Administration: (02) 93821684
  • Nurse Consultant: 02) 9382 1845

Clinic information

Neuromuscular clinic

The Neuromuscular clinic is supported by a multi-disciplinary team including a cardiologist, respiratory physician, sleep physician, orthopaedic surgeon (scoliosis and general), nurse consultant/care coordinator physiotherapy, occupational therapy, dietician, psychologist, social worker, and orthotic services.

Many of the staff are available on clinic days.

Clinic times: The Neuromuscular Clinic operates every Friday morning from 8.30-12.30

Location: Sydney Children’s Hospital High St, Randwick, Outpatient Department, Level 0

 

 

Outreach clinic

The Outreach clinic service is provided at the Women’s and Children’s Hospital, Canberra Hospital twice a year.

Enquiries please call Nurse Consultant on (02) 9382 1845. 

Last updated Wednesday 6th December 2023

Patient and family support

A smiling Aboriginal family.
Our Aboriginal Hospital Liaison and Education officers play an important role in the care and welfare of and advocacy for Aboriginal patients and families, helping ensure a responsive and respectful patient journey.
A young girl sits on her mother's lap on a hostpital bed.
We can arrange a free interpreter for you. Interpreters are available for over 50 languages. Tell us which language you speak when your child is admitted, or let your nurse know.
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The Cartula Health app helps manage and inform you about your healthcare journey at the Sydney Children’s Hospitals Network. You can organise your appointments and hospital documents all in one place!