Together, members of the palliative care team take the time to get to know both your child and your family. Because every child and family has individual needs, you may meet and work with different me...

Planning ahead can feel daunting in palliative care settings, but we're here to help with all the things you need to consider. From equipment in the home and creative memory making, to spirituali...

Whether you're after books to read or support groups, interested in becoming a palliative care representative or simply want to get in touch... you'll find the info you need here. ...

The following list has been created to help parents and carers understand terms that may be used by health professionals when discussing end of life care decisions for their child. It is not intended...

We are looking to engage with a diverse range of families and community members that have experience with our services to help shape our future.The Families and Consumer Council (FACC) is made up of p...

Families Online is an online group that gives feedback to the hospitals on projects that affect families. We want to ensure that we listen to the diverse communities and people we care for.Members rec...

IntroductionThree layers of tissue protect the brain and spinal cord. They include the:pia mater – the inner layer that sits next to the brainarachnoid – the inner layer that is filled with fluid...

This is a guide for health professionals to support procedures for children with Epidermolysis Bullosa (EB).Patients with EB will experience pain, blistering, skin shearing and/or degloving wounds if ...

This information has been developed for all health care professionals who may care for a child with a life-limiting illness. Our goal is to improve awareness of the NSW Paediatric Palliative Care...

On this page Contact General enquiries: (02) 7825 2931 Int...