At eleven years old, John is a bright and bubbly pre-teen who lights up every room with his infectious smile and playful energy. He is currently obsessed with his mum’s old CD collection, exploring vinyls and has a growing passion for capturing live music through his camera lens. His world is filled with creativity and curiosity. 

But behind it all is a diagnosis that changed his life—and his family’s—forever, and a journey marked by the courage to pursue something more.

In 2019, when John was five years old, his parents noticed he was limping and took him to their local paediatrician. 

“The diagnosis was absolutely devastating – it was such a shock. When we found out it was Duchenne muscular dystrophy, everything changed,” Bryony, John’s mum, said... read more.