It would take 10 years before genomic testing would finally diagnose Edmond with an extremely rare neuropathy and support in providing a treatment with life-changing results.

Paediatric patients across NSW will now have better access to advanced technology which provides live saving critical care and life support, thanks to the Kids ECMO Referral Service (KERS).

Maddy's sister, Sienna, was born with Spinal Muscular Atrophy in 2008. Soon after, the family were introduced to Bear Cottage. Sadly, Sienna died at age 2, but Maddy has remained part of the Bear Cottage family ever since.

When eight-month-old Eli was left struggling to breathe, doctors initially suspected common childhood illness like croup and bronchiolitis. Instead, this marked the beginning of what would be a challenging cancer journey.

Removing tumours at the base of the skull used to involve removing part of the skull and exposing the brain. Now, it can be done without a single cut.

A world-first study has shown a low carbohydrate, high fat diet could have a life-changing impact on cognitive function for children living with Kabuki syndrome.

Since being diagnosed with chronic pancreatitis, ten-year-old Daisy has lived in debilitating pain. That was until an innovative surgery took that all away. Now, after a month in hospital, she has returned home with a new lease on life.

The Children's Hospital at Westmead and Sydney Children's Hospital, Randwick are hosting a free influenza (flu) vaccination clinic for babies (>6 month), children and young people (under 16 years) and members of their household

The art project encouraged children to write messages to support future patients, and celebrate the new hospital, and research building reaching full height.

A brain cancer diagnosis hasn’t stopped eight-year-old Xaviah from lighting up every room he enters with his contagious laugh and boundless kindness. It's this incredible zest for life that defines exactly what palliative care is all about – living life to the fullest.