For families like Angelina’s, a rare disease diagnosis can feel like being lost in a dark forest, desperately searching for a clear path forward.

Precision medicine offered a renewed hope for ten-year-old Nicholas when his acute myeloid leukaemia returned.

Twelve-year-old Kobe has become the first child in Australia to receive a diaphragm pacer, helping him breathe independently for the first time in six years. 

Diagnosed with Acute Lymphoblastic Leukaemia (ALL) at the age of three, Lencia has spent more time in hospital in her short life than most people would in a lifetime. Now seven, Lencia has finally returned to New Caledonia, just in time for Christmas.

Nine-year-old Aisha has become the first child in the country to undergo a revolutionary new MRI laser procedure to treat drug-resistant epilepsy.

It would take 10 years before genomic testing would finally diagnose Edmond with an extremely rare neuropathy and support in providing a treatment with life-changing results.

Paediatric patients across NSW will now have better access to advanced technology which provides live saving critical care and life support, thanks to the Kids ECMO Referral Service (KERS).

Maddy's sister, Sienna, was born with Spinal Muscular Atrophy in 2008. Soon after, the family were introduced to Bear Cottage. Sadly, Sienna died at age 2, but Maddy has remained part of the Bear Cottage family ever since.

When eight-month-old Eli was left struggling to breathe, doctors initially suspected common childhood illness like croup and bronchiolitis. Instead, this marked the beginning of what would be a challenging cancer journey.

Removing tumours at the base of the skull used to involve removing part of the skull and exposing the brain. Now, it can be done without a single cut.