Resources and support | Epilepsy clinician handbook
Resources and support information for epilepsy clinicians.
- Finding a way video series: designed for parents of children with severe epilepsy that persists over a long time.
- Living well with epilepsy: video for teenagers with epilepsy which includes important information such as safety and lifestyle choices.
- General information on ketogenic diet as epilepsy treatment
- Sudden Unexpected Death in Epilepsy (SUDEP)
- Administering Midazolam
Emergency resources
- First aid seizure management plan for parent/carers and schools: use downloaded file - DO NOT complete online
- Paediatric emergency seizure medication plan for parent/carers: use downloaded file - DO NOT complete online
- Acute management of seizures NSW clinical practice guidelines
- First aid during seizures
- CPR safety courses
First seizure and management packs
- First seizure pack and video: every child who presents with a first afebrile seizure should be given a first seizure pack.
- Epilepsy management pack: This pack should be given to every child with a new diagnosis of epilepsy.
Case management
Support groups and mental health
Midazolam administration
We have created an educational video for parents/carers on the safe administration of buccal midazolam.
This resource is only to be used by parents after instruction and demonstration on the safe administration of midazolam by a healthcare professional. It is an adjunct to education, not the first educational tool.
The following resources may also be helpful for parents/carers whose child has been prescribed buccal midazolam.
Driving
See driving information for families
AUSTROADS
Austroads is the peak organisation of Australasian road transport and traffic agencies. The organisation produces the document: Assessing Fitness to Drive, which includes the medical standards for licensing. This section includes guidelines for both the default standard and variations to the default standard (for example, Seizures in childhood, First Seizure, Epilepsy treated for the first time, Seizures only in sleep etc):
- Austroads: Assessing Fitness to Drive (for access to full downloadable pdf or online version)
OTHER RESOURCES
The Epilepsy Society of Australia and the Australian and New Zealand Association of Neurologists have created downloadable resources including an information brochure for patients with epilepsy on driving and an epilepsy and seizure data form for NSW patients including an algorithm (see links below). The Epilepsy Society of Australia also has information about driving and seizures.
- Driving and epilepsy – Information Brochure for Patients
- ANZAN – ESA Epilepsy and seizure data form - for NSW private drivers
- ANZAN - ESA Epilepsy and seizure data form - for SA private drivers
- Epilepsy Action: Driving information
- Epilepsy Society of Australia driving brochure