Kids rare diseases

Kids rare diseases

Providing specialist care, assessment and ongoing support for children and young people living with a rare disease. 

Our services

Select a service to access referral and appointment information, clinic details, hospital support services, information for parents and carers, department contact details, and more. 

Related services

Milla's story: our approach to complex care

Watch Milla's story to learn more about our multi-disciplinary model-of-care for diagnosing and treating complex and rare medical conditions. 

Milla lives with a complex condition. She relies on more than 10 teams across The Children's Hospital at Westmead for her care. 

Last updated Friday 8th March 2024