Cancer Centre for Children, The Children’s Hospital at Westmead
Contact
Enquires: (02) 7825 2134
Current patient appointments: (02) 7825 2115
Camperdown ward: Level 2 opposite The Starlight Room
Oncology Treatment Centre: Level 2 off Ward Street
About our service
The Cancer Centre for Children is located within The Children's Hospital at Westmead and is a world-class facility with highly qualified and skilled staff. It is the largest comprehensive paediatric treatment centre in New South Wales and provides support to several hundred young patients with cancer and their families each year.
Our services
Our clinical services cover the diagnosis and treatment of all forms of childhood cancer and leukaemia including:
- dedicated inpatient ward for acute care Camperdown Ward (Oncology inpatient care)
- outpatient treatment centre for ongoing management and support care
- bone marrow transplantation service
- neuro-oncology service
- radiation oncology
- psychological and support services
- palliative care and bereavement support
- late effects clinic
- education of parents/families and health professionals
- clinical research and clinical trials, including participation in the research trials of the US Children's Oncology Group (COG).
Referral process for clinicians
Our department is using Consultmed to manage referrals. The Consultmed platform allows health professionals to send e-referrals to us securely.
Consultmed questions and technical support: helpdesk@consultmed.co
Referral to the Cancer Centre for Children
- Referral of a child with the possible diagnosis of cancer and leukaemia should be via prompt contact with the oncologist on-call, available 24 hours per day via the Hospital switchboard on (02) 7825 0000.
- Children may come to the outpatient clinic to receive cancer treatment. Patients who are already under the care of the Cancer Centre for Children may make appointments to attend the outpatient clinic by phoning (02) 7825 2115.
- Referral to other clinics within the Cancer Centre for Children, including the Late Effects and BMT Clinics, is made by the treating oncologist.
- Camperdown Ward provides inpatient care for children who are under the care of the Cancer Centre for Children and is found on Level 2 of the hospital opposite The Starlight Room.
Outpatient treatment
The Cancer Centre for Children caters to about 40 patients a day performing a variety of services including blood collection, doctor visits and treatments.
The clinic is normally open from 8:00am to 6:00pm Monday to Friday.
Appointments
When inquiring about an appointment please be ready to quote your child's full name, address, date of birth and the medical record number if the child has been to the hospital before.
When you are given a time for your child's appointments, please remember that this is a guide only for when they will be seen. Depending on how busy the clinic is, you may be at the hospital for several hours.
Doctors see children for appointments from 8.00 a.m. until 1.00 p.m.
If your child is unwell
Children who are unwell, and normally visit the Oncology Treatment Clinic, are not required to go to the Emergency Department but can see their regular doctors in the OTC who are familiar with their needs. Often children experiencing this kind of emergency are admitted to hospital through the clinic.
Meet Donna and Mira
Children, who have been booked in for an appointment, are asked to arrive about 30 minutes earlier in order to check in at the administration desk with Donna or Mira who will organize pathology tests for most children, so the results will be ready when they see the doctor.
In the waiting room
The Cancer Centre for Children's big waiting room has many resources to entertain, distract, educate and pass the time. Your child can play with toys, do craft, work with a school teacher or just relax on comfortable chairs with a book or device.
Electronics
There are iPads, portable DVD players, laptops and Nintendo DS consoles available for children to use when they are in the room.
Music and play
Your children can enjoy being read a story as part of a group, or have fun with music, at various times each week. Children can play and explore a range of musical instruments and props while singing their favourite songs. These sessions provide an opportunity for self-expression, provide distraction before and after appointments, and develop social skills through peer interaction, joint play and learning to take turns. Our Music Therapists and Child Life Therapists run these activities and by focussing on being positive and having fun can help lower stress in children and distract them from worries.
Books
Medical procedures can seem more normal and be less worrying to children when they are explained using language and pictures they can understand. The 'Wondero' books were developed by Lisa Carnovale and Cathy Quinn, who are Child Life Therapists and show Wondero with a central line and having a bone marrow transplant. These books are available in the waiting room for you to use with your child.
I spy
Your child can search our 'I spy' posters, located in the blood room and doctor's rooms, to provide a distraction from procedures. They can also pick a distraction toy from the baskets in the blood room to use during their next blood test.
You are always welcome to ask our Child Life Therapists for information about helping your child to cope better.
Oncology Playroom Volunteers
We have highly valued and appreciated volunteers are in the playroom every day who can help you. They can:
- Sit with your child for a short while if you wish to go and get a coffee
- Get PlayStation and Xbox games for you to use in the waiting room
- Set up craft activities
- Keep you company
- Get an iPad for you to use while you're in the waiting room
- Get play dough, games or activities
- If there is anything else you need, just ask our volunteers or a staff member. They are always happy to help.
And there's more... Sometimes there are teachers available to do a little schoolwork with your child, volunteers doing craft, and toys like Lego.
Pathology tests
A nurse collects blood for tests from your child’s central line, or a finger prick, which usually only takes about ten minutes. Other tests might include weighing your child on a set of scales, measuring their height, and checking their blood pressure.
These activities take place in a room next to the reception desk and from there children go to the waiting room to wait until the doctor can see them. You may wait for around 45 minutes to an hour depending on how busy it is or if there is an urgent case that needs priority assistance.
Seeing your doctor
When called to see a doctor, your child is shown to one of the six brightly coloured consultation rooms. The colours are fun and vibrant but also practical as it is easy for you and your child to visit the red, green or blue room rather than looking for a room number.
If a doctor needs to consult with you, or there is a period of time when your child may get bored, there are toys in a basket for them to play with and a small desk in each room where they can draw or colour in.
Children are in the consultation rooms for varying lengths of time. Often they will be seen for around 15 to 20 minutes, but this varies depending on their unique needs.
After reviewing the child’s pathology, and examining them, the doctor will usually organise treatment, if the child is able to do it, which takes place in the treatment rooms.
Treatment
When your child is ready to have treatment, nurses are notified electronically via a large monitor in the nurses’ area. They then organise the treatment according the doctor’s directions.
Two treatment rooms
There are two treatment rooms, with distractions in each for treatments which can cause discomfort or are distressing, including a tall cylinder filled with water that bubbles that your child can use a remote control on to make different colours; a projector that spins coloured spots of light that move across the walls and ceiling; an assortment of toys; and an elaborately painted mural they can look at to find creatures like bees, fairies or dragonflies.
Treatments that might be given include chemotherapy, which varies according to your child’s needs and might last from five minutes to over six hours, blood or platelet transfusions, and support care such as anti-nausea, antibiotics, IV fluids and anti-fungals.
Other facilities
A large room with three beds allows children to lie down in the treatment area when needed and a room with many comfortable chairs enables them to sit comfortably while having treatment. An isolation room, in the treatment area, keeps children separate if infection is deemed a problem.
Regular procedures
Minor procedures are also conducted. Lumbar punctures and bone marrow aspirations are normally done on Mondays and Thursdays. CT scans are often done on Tuesdays and MRIs are usually done on Wednesdays.
Younger children often require anesthetic and need to be checked by a doctor before having procedures they may be unable to remain calm and still such as when attending the radiology department.
Sometimes chemotherapy may require a patient to remain the hospital overnight and more extensive treatment might require a stay of up to five days. Planned chemotherapy may require longer stays if there are complications such as nausea or a fever.
OTC clinics
The Oncology Treatment clinic is home to a variety of clinics that perform vital functions.
- The Bone Marrow Transplant clinic treats patients about three times a week and has follow-up procedures
- The Long Term Follow-up clinic treats patients who completed their cancer treatment over five years ago
- The Neuro-oncology clinic treats children with brain tumours. It has a strong emphasis on clinical trials to improve outcomes for children.
Hospital support services
Staff who work in hospital support services are university qualified health professionals who provide a range of diagnostic, therapeutic and direct patient care as part of the team supporting the needs of patients. They are:
- Social workers
- Child life therapists
- Music therapists
- Physiotherapists
- Occupational therapists
- Dieticians
- Hospital School teachers.
They can play a vital role in improving the health and wellbeing of patients.
For more detailed information on these services, please refer to The Cancer Handbook.
Oncology Survivorship clinic
Supporting your health care needs after cancer treatment.
The oncology survivorship clinic provides specialised care for children, adolescents and young adults who have completed treatment more than 5 years ago for a cancer diagnosis before the age of 18 years.
Even after treatment ends, some health effects can appear years later. The oncology survivorship clinic helps to monitor for long-term effects of treatment, support physical and emotional wellbeing, provide personalised health recommendations, and ensure smooth transition to adult services, if needed. Appointments are every 2-3 years depending on individual needs with the aim of discharging care to a nominated GP or appropriate adult service.
Our goal is to ensure you feel informed and confident about your health information, understand the recommendations for life-long care, are connected with the right services/ specialist that you may need and have a trusted GP.
Why is follow-up care in a specialised clinic important
Survival rates for childhood cancer have risen dramatically over the last 30 years from 25% to almost 80%. However, treatment for childhood cancer is often complicated and may include chemotherapy, radiotherapy, surgery, or a combination of therapies, which can potentially cause long-term health issues for young people.
Complications can include problems with growth, learning, hearing, vision, the heart, lungs, thyroid gland, mood, quality of life, reproductive system, bones and joints, digestive tract, kidneys, and secondary cancers. Many of these complications may not appear for many years after treatment and survivors remain at life-long risk of developing some of them.
What happens at the clinic
The oncology survivorship clinic is staffed with clinic nurse consultants, psychologists, and social workers along with a team of doctors specialising in paediatric cancer including oncologist, endocrinologist, male hormone specialist, radiation oncologist and gynaecologist/female fertility specialist.
What happens at the appointment
Depending on your diagnosis and treatment you received, a series of tests will be organised. These commonly include a blood test (full blood count, electrolytes, thyroid function test and hormones) and an echocardiogram – heart test. Some patients also require a thyroid ultrasound, a lung function test, an eye review, and a hearing test.
A personalised treatment summary will be prepared and given to you. This will include a record of your previous treatment and recommendations of routine life-long health surveillance. It is an especially important document for when you travel, relocate or move to a new GP or adult health system.
After your clinic visit, a report will be sent to your nominated GP (copied to you and any other relevant specialists) detailing the outcome of the clinic visit. The report will include your results, follow-up appointments and instructions for future care.
Contact the oncology survivorship clinic
We are happy to answer any questions. Please email Oncology Survivorship Clinic or call 0455 605 904.
Tumour Bank
The Tumour Bank is a biobanking facility that collects paediatric cancer specimens to support scientists in clinical research aimed at improving cancer treatments for children. Specimen donations to the Tumour Bank are completely voluntary and are collected through the normal course of treatment for patients at our hospitals.