• phone referral to the EB service at Sydney Children's Hospital, Randwick
• photos of wounds used for initial clinical assessment
• assessment: location and facilities of birth hospital, and severity of wounds, to determine if transfer to Sydney Children's Hospital, Randwick is required
• same day courier of new baby EB box set up with suitable dressings to birth hospital.

• communication with the Newborn Emergency Transport Service (NETS) or ambulance
• mother transferred to birthing hospital on same site as Sydney Children's Hospital, Randwick.

• EB team contacted by email
• dermatology, paediatrics, genetics, nursing, dietetics and social work all involved from day of arrival
• mother linked to midwifery support from local birthing hospital if not admitted locally as an inpatient
• length of hospital stay guided by wound management, growth and availability of home nursing
• discharged with home nursing and weekly hospital reviews until birth trauma is stabilised
• first EB clinic scheduled after parents confident with dressing changes and clinic contact is less than fortnightly.

End of newborn pathway