Postnatal referral (no transfer needed)

Postnatal referral (no transfer needed)

  • phone referral to the EB service at Sydney Children's Hospital, Randwick
  • photos of wounds used for initial clinical assessment
  • assessment: location and facilities of birth hospital, and severity of wounds, to determine if transfer to Sydney Children's Hospital, Randwick is required
  • same day courier of new baby EB box set up with suitable dressings to birth hospital. 

No transfer needed

  • local hospital to manage baby’s care
  • email care pathways, DEBRA Australia resources, procedure information and nursing support
  • Sydney Children's Hospital Randwick's EB clinical nurse consultant to visit hospital if possible.

Home and hospital support

  • local home nursing supported by Sydney Children's Hospital, Randwick
  • follow up hospital visit for education and support by nurse after family settled at home
  • baby scheduled for review at next EB clinic.

End of newborn pathway

Last updated Tuesday 30th January 2024