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Talking with your child before surgery can help them to cope with the experience by knowing what to expect.The hospital environment has many unfamiliar sights, sounds, and people which can be confusin...
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You can encourage your child to participate in their chosen sport or area of play by:using prevention techniquessupport from the EB teamalterations to your child's choice of activity occupational ther...
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Children with Epidermolysis bullosa require specialised non-adhesive dressings. Standard dressings not only make current wounds worse but can sometimes cause large wounds when they are removed.Early c...
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Education and support is provided for communities and families living with Epidermolysis bullosa. The EB team at can support families by assist GPs and local health care providers to ma...
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Check out our how-to videos
Epidermolysis Bullosa: Newborn Hand Bandaging Techniques
Epidermolysis Bullosa: Finger Wrapping Bandaging Technique
Epidermolysis Bullosa: Webspace Wrapping Ba...
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PainThere are many options for pain relief to support children living with EB. The wounds that some children experience have been likened to severe burns.Different prescriptions can be organised for w...
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Epidermolysis Bullosa, wounds and hydrotherapyEpidermolysis Bullosa and Mental HealthLiving with Epidermolysis Bullosa and managing school...
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Being brave through Epidermolysis Bullosa appointmentsSupporting children through Epidermolysis Bullosa care ...
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Our clinic staff can help you apply for the National dressing scheme. The National EB Dressing scheme (NEBDS) supports people with epidermolysis bullosa (EB) by providing affordable access t...