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Our clinic staff can help you apply for the National dressing scheme. The National EB Dressing scheme (NEBDS) supports people with epidermolysis bullosa (EB) by providing affordable access t...
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Life with Epidermolysis BullosaThe Emotional Impacts of Epidermolysis Bullosa for parents...
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Epidermolysis bullosa handbook
Learn about daily management, wound care and educational support in this handbook designed for patients and families....
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Regular bathing is one of the most effective ways to assist with wound healing and keep infection away.Many children with EB do not like bathing, so a fun, interactive bath time routine from an early ...
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Here's a list of clinical practice guidelines for Epidermolysis Bullosa (EB). Delve into essential protocols and recommendations designed to enhance the care and management of individuals affected by ...
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We can provide support documentation for the Department of Education's healthcare plans, NDIS applications and carer support.The clinic will also connect with the daycare and school established p...
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Explore the topics in this chapter to learn more about managing Epidermolysis bullosa in your child's daily routine.
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Normalise brushing twice a day and allowing your child to control the speed and pressure and encouraging them to communicate with you when they have pain or oral blisters. Dental care is importan...
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ClothingLoose clothing is recommended for people with EB. Clothes with minimal seams, tags and elastic are less likely to cause trauma to the skin than tight synthetic clothing.Shoes need to be well-f...
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The service works closely with regional hospitals to provide appropriate pregnancy, labour and postnatal care for pregnant women and families where a newborn Epidermolysis bullosa (EB) diagnosis ...