We invite our families to get involved with us by becoming a palliative care parent/carer representative. 

This is an opportunity to give your feedback directly to the three palliative care services. Your knowledge and experiences helps us know if we are doing things well or what we can do better.

How we may ask for your involvement

• review of palliative care resources (information sheets, website pages)
• participation in projects (e.g. focus group discussions, surveys)
• service development and planning opportunities

We understand that caring for an unwell child is demanding and there will be times when you have limited ability to participate. Your participation will always be voluntary and you are able to participate as much or as little as you like.

If you are a bereaved parent/carer, we also invite you to get involved as a representative. Your experience and ideas can be used to help continue improving the care and support for children and families who are referred to palliative care.