When a child has been diagnosed with a life-limiting illness or a referral to palliative care has been made, family members may begin to explore or reconnect with their spirituality.
There are many different types of spirituality and it plays different roles in people’s lives.
People can be ‘spiritual’ without being religious, whereas most religions have a spirituality element.
Some people don’t see themselves as spiritual while others think about it occasionally. Some might have spiritual practices or rituals, while for others, spirituality determines their values and guides their decision making.
Spirituality shapes beliefs and brings understanding and meaning to why we are here. It is those things that bring hope, purpose, comfort and strength.
How people practice spirituality
When a child has a life-threatening illness it is common for family, friends and community to reflect on the ‘bigger’ life questions - ‘Why is this happening?’, ‘ What is the purpose of this?’, ‘Why me?’.
At these times spirituality can provide comfort, hope, or strength, and generally help people cope at one of the most difficult times in their lives. It can also be a time when people become distressed or confused- possibly even question their spiritual or religious beliefs.
It is often through connection with others, nature, or to something that has meaning or is sacred. It can be through religion, prayer, or belief in a God, being, or higher power. It can be through faith, prayer, meditation or time to reflect on your own or with someone else.
Why it's important to talk to us about your spiritual beliefs
Spiritual beliefs will be different for every child and family. It is therefore important that families talk to their palliative care team and other health professionals to ensure they understand your individual spiritual beliefs and how these may influence your decisions throughout an illness, during end of life and death.
Palliative care teams can also connect families to spiritual support services if required. We encourage you to talk with a staff member from your palliative care service if you would like to learn more about this