Occupational therapists and physiotherapists working in palliative care are concerned with quality of life and health and well-being. We aim to achieve this through supporting function and participation.
We work with children, adolescents and their families to make goals together and set priorities. What is important and meaningful may change over time so goals and priorities can be flexible.
We work together, not only with the child and family, but also with other therapists who may already have strong relationships with the child and family to
- minimise time spent in hospital
- set up a supportive home environment
- support participation in activities like eating, drinking, bathing, sleeping, playing and school
- do things safely
- look after your body
- optimise comfort and pressure care
- support moving and being active
- play and develop new skills
- manage pain
- manage respiratory symptoms.
Equipment
Equipment can help the child or adolescent to sit, stand, move and support the different positions adopted both day and night. This does not always mean the provision of specialised equipment. Quite often we can use what families have at home.
Where this is not possible, occupational therapists and physiotherapists work with the child, adolescent and family to look at the best options to meet functional and participation needs.
Funding and equipment availability can vary depending on a range of factors, so we aim to plan ahead for future needs.
Individual assessment
As each child and family are different, an individual assessment is needed. Local teams are best to work with families to determine equipment needs and funding options. The specialist paediatric palliative care teams are available to consult with local teams on a case by case basis.
Health providers may contact staff from each of the 3 services to discuss any concerns and identify opportunities to work together to benefit patients and their families