Experts are calling for research to look at how gene therapies can be adapted and scaled to become standard practices for people right around Australia.
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We are looking to engage with a diverse range of families and community members that have experience with our services to help shape our future.The Families and Consumer Council (FACC) is made up of p...
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Families Online is an online group that gives feedback to the hospitals on projects that affect families. We want to ensure that we listen to the diverse communities and people we care for.Members rec...
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IntroductionThree layers of tissue protect the brain and spinal cord. They include the:pia mater – the inner layer that sits next to the brainarachnoid – the inner layer that is filled with fluid...
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The Youth Council is made up of young people (aged 14-24 years) who want to make positive changes within our services. We want to know what is important to you and how we can improve your experience.&...
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This is a guide for health professionals to support procedures for children with Epidermolysis Bullosa (EB).Patients with EB will experience pain, blistering, skin shearing and/or degloving wounds if ...
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This information has been developed for all health care professionals who may care for a child with a life-limiting illness. Our goal is to improve awareness of the NSW Paediatric Palliative Care...
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General enquiries: (02) 7825 2931 Int...
With summer comes the timely reminder to stay alert and help keep kids safe in the great outdoors and around devices that can cause harm and injuries.
Tyler’s journey with Parasellar Ganglioma has inspired the 16-year-old to share his story to help other children and adolescents in hospital.
